"Young carers views"

We with some Young Carers and they told us about some things about their experiences with health services in Fife.

The things they shared which were positive: -

I got a lift home from my mum’s occupational therapist.

I was allowed to stay past visiting hours to make sure the person was comfortable and settled in ok.

Helpful changes were made to the house, disabled access shower and grips added to walls.

Doctor recognised rheumatoid arthritis quickly.

Occupational therapist has helped my dad get around the house, replaced equipment quickly and showed us how to use stuff.

Felt included in chats with diabetic nurse and included in the plan.

Great carers for disabled aunt, doctors and nurses came out to her, very supportive.

The things they shared which were not so positive: -

When my mum was in hospital I asked what room she was in and they didn’t know who I was talking about. They then realised who I meant but wouldn’t tell me as I was on my own.

Not being told information that I needed to know.

Not being told information because the person has no carers card or because they are not the main carer.

Wouldn’t let me in the room with my mum even though I said I was a carer.

Doctor sent someone who had a stroke home saying “sober up”

My mum feels like the doctor thinks she exaggerates things and feels somewhat ignored

A&E staff were very cold (in manner)

Mum got a new nurse, nurse didn’t listen, when taking blood and started swirling needle around in arm. Mum left with massive bruise.

Social workers getting it wrong, proposing a plan that would be completely wrong for my family.