"Support from continence service after covid"

After getting covid in 2022 I had double pneumonia, kidney and liver failure, sepsis, had to have a tracheostomy, and put on a ventilator, I then had a cardiac arrest. Catheter put in.

When i started to recover was taken off ventilator and put on a ward and had no mobility so still cathetorised hur problems with it have been left with sciatica, scirosis orlf the liver , and enlarged , had to have gall bladder removed .

Been left doubly incontinent, and have to wear pads 24/7 . Left with poor mobility and asthma, had have stair lift in and use mobility aids and bathroom ripped out and adapted. Left with long covid extreme fatigue and breathlessness, still have no taste or smell. Can fall asleep without realising it head drops holding phone and telly remote control. Feel exhausted all the time and find it hard to exercise.

Have days where i have to stay in bed as im so tired i cant hardly stand i worry i may have ME not diagnosed but not normal to feel this exhausted all the time to the point that i have no energy at all almost feel like ive got flu. As cant even raise my arms to comb my hair.

I am now type 2 diabetic and have dread full neuropathic pain and have dropped feet my left foot dropped more than than the other, have orthotic braces to wear to stop me tripping over my own toes, but they hurt my feet when I wear them and the neuropathic pain is worse. I have dreadful headaches and muscles pain all over my body all the time, dreadful fidgety legs and cramps. I hardly go out due lack of energy poor mobility. Dizziness, cant concentrate on anything , find it hard to read letters and texts, emails etc need constant care from my husband.

I cant think of the words I want to say so cant hold a confident conversation with people face to face or on the telephone. Have dreadful anxiety. Over all covid has changed my life and turned it upside down. Can no longer work and relying on pip and Universal credit . Feel useless 😕 and hate having to put all the extra work on my husband .

If it wasnt for the services available like the incontinence clinic nurses etc who are trying to help me i dont know what i would do. I have been referred to long covid clinic by the incontinence nurse as my gp never even offered it. Hoping they can help and maybe look into whether i do have ME or just long covid.