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"Lack of neurodivergent understanding and feeling unheard"

About: Mental Health Community Services / Telford & Wrekin Community Mental Health Service

(as the patient),

I reached out for help during a very vulnerable time when I was trying to process trauma and make sense of my experiences as a neurodivergent person. Instead of feeling understood, I often felt misunderstood, dismissed, and labelled in ways that didn’t reflect what I was actually going through.

There seemed to be a lack of understanding around neurodivergence, particularly how trauma, communication, and emotional responses can present differently. My way of expressing myself and processing things was often misinterpreted, which led to me feeling judged rather than supported.

When I tried to explain my experiences, the focus quickly shifted towards medication instead of taking the time to understand me as an individual. I didn’t feel safe to speak openly because I was worried about being labelled or sectioned again. This made it very difficult to build trust with professionals involved in my care.

As a result, I felt unheard, unsupported, and at times powerless. My lived experience and insight were not valued, and I was left feeling stuck rather than helped to move forward. This has had a lasting impact on both my mental and physical health, as I ended up neglecting my own health needs while trying to navigate the system.

What I needed was understanding, patience, and a neurodivergent-informed approach—where communication differences are recognised and respected, and where people are listened to without judgement.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Quality and Governance Lead, Shropshire, Telford and Wrekin Care Group, MPFT 2 months ago
Submitted on 16/06/2026 at 16:59
Published on Care Opinion at 17:01


We are sorry to hear that your experience of our service left you feeling unheard, unsupported and powerless. As you mention, it is vital that a solid relationship based on trust and empathy is established with the professionals involved in your care, so again, we are sorry that this was not the case in your care with us. We are keen to learn how we can enhance our service and want to encourage people to come forward and share with us their experiences and how they think we can make changes to develop and improve. This can be achieved through direct contact with our Team Leads on 0300 303 1601 or if this would be difficult because of the service you have previously received, our colleagues in the Involvement team are always seeking participation from lived experience individuals in shaping services for the future. The Involvement Team can be contacted on 01785 221377 or involvement@mpft.nhs.uk

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