"A Journey of Care, Compassion, and Gratitude: Our Story"

About: Royal Hospital for Children (Glasgow) / Special care baby unit University Hospital Wishaw / Neo-natal Intensive Care

(as a parent/guardian),

After spending three weeks in hospital due to my own ill health, we were faced with the difficult but necessary news that, for the safety of both myself and our baby, it was time to deliver.

Our daughter was born at 28 weeks, weighing just 2lb 9oz. She spent a total of 10 weeks in hospital, split between Wishaw and Glasgow. The first four weeks were spent in the NICU (Neonatal Intensive Care Unit), and then she was transferred to Glasgow for further investigation. During her time there, she needed to be ventilated, which was terrifying for us as parents. We stayed at Ronald McDonald House to ensure we were as close to her as possible.

In just two weeks, she went from being ventilated to breathing entirely on her own, which was a huge relief. She did not require any surgery, and we were able to return to Wishaw. There, she spent another 3.5 weeks in the Special Care Baby Unit (SCBU).

Just days before we were set to go home, we were told that she would need to go home on oxygen. This was a huge shock, but we knew it was the best thing for her. We spent the final 3 days in the Transitional Care Unit (TCU) to help us adjust and prepare for life at home with a baby on oxygen. At the time, it felt overwhelming, but it quickly became part of our daily life.

Our time in the NICU taught us invaluable lessons:

You will experience every emotion possible in a single day.

•Celebrate every win, no matter how small.

•Ask questions—even if you think they might be silly.

•Leaving your baby in the hospital overnight is one of the hardest things you will ever do, but the only comfort we found was knowing she was in the hands of the best possible care. I will never be able to fully express how thankful we are to the incredible staff at University Hospital Wishaw and Royal Hospital for Children Glasgow for looking after our daughter until she was ready to come home.

The personal approach to care, always keeping us fully informed and involved in decisions about our daughter's care really made a difference to our journey. Thank you so much for always being there to listen and understand with such care and compassion. The NICU staff are truly some of the most special people, and we are forever indebted to them for keeping our baby safe.

Today, our daughter is a healthy, happy, and thriving 1-year-old, thanks to the exceptional care she received. We will forever be grateful.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Craig Eden, Improvement Advisor, Quality Directorate, NHS Lanarkshire 3 days ago
Craig Eden
Improvement Advisor, Quality Directorate,
NHS Lanarkshire

This person works pan Lanarkshire on areas of improvement

Submitted on 18/11/2024 at 16:41
Published on Care Opinion at 16:41


Dear Giftmg73,

Thank you for sharing such lovely feedback for our staff in the Neo-natal unit at UHW.

Your feedback will be shared with the team who I'm sure will be delighted.

Kind Regards,

Craig

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Response from Kevin Torbet, Admin Assistant, Patient Experience and Public Involvement, NHSGGC yesterday
Kevin Torbet
Admin Assistant, Patient Experience and Public Involvement,
NHSGGC
Submitted on 20/11/2024 at 10:14
Published on Care Opinion at 10:14


picture of Kevin Torbet

Dear giftmg73

Thank you so much for sharing your family’s remarkable journey. Your story captures the strength, resilience, and love that define such challenging experiences, and we are truly touched to hear about your daughter’s progress and her incredible milestones.

The team at the Royal Hospital for Children will be deeply moved by your kind words. They dedicate themselves to providing the highest standard of care to babies and their families during what can be an incredibly daunting time, and your recognition of their compassion and expertise means so much.

Caring for premature babies and supporting families through such complex medical journeys requires not only clinical skill but also empathy, communication, and partnership. It’s heartening to know that you felt fully supported and informed every step of the way.

Your daughter’s strength and progress from being ventilated to breathing independently, and now thriving as a 1 year old are a testament to her fighting spirit and the collaborative care provided by everyone involved. Thank you for recognising the staff and their personal, compassionate approach. Stories like yours remind us why we do what we do, and we will ensure your thanks are shared with the teams who cared for your family.

We are also grateful for the invaluable advice you’ve shared with other parents who might face similar challenges. Your insights and reflections will undoubtedly resonate with and support others in the NICU community.

Kind regards

Kevin

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